Despite advances in treatment options, heart failure (HF) remains a progressive, symptomatic and terminal disease for a large number of patients. The need for enhanced discussions regarding prognosis and goals of care has been recognized by multiple professional societies and public health policy and yet, these conversations rarely occur in a timely manner. Shared decision making (SDM) is the process through which clinicians and patients work toward treatment decisions that are aligned with the patients’ values, goals and preferences. SDM is especially appropriate when treatments carry an uncertain benefit and a potential risk and underscores the fact that neither medical evidence nor patient values alone can determine the best treatment for a patient. The foundation of these discussions should focus on a general understanding of disease trajectory and prognosis, with a clear acknowledgment of prognostic uncertainty. These discussions should include not only the risks of death but also the potential burden of worsening symptoms and decreased quality of life. The goal of these discussions should not be to rule in or rule out specific therapies in a future hypothetical scenario, but instead to prepare our patients and their loved ones to make “in the moment” treatment decisions when faced with an acute decompensation, taking into context the state of their illness at that time.Copyright © 2020. Published by Elsevier Inc.
About The Expert
Caroline McGuinty
James Downar
Michael Slawnych
References
PubMed